Journal of Human Values, Ahead of Print.

Each Local Research Ethics Committee (LREC) is expected to produce an annual report for its establishing authority. Reports from 145 LRECs were examined with regard to (a) whether the committees were working within the terms of the most recent guidelines from the Department of Health and (b) observations on the role of LRECs with particular reference to accountability. Most LRECs had produced a report, although their length varied greatly. Most reports showed how seriously the committee took its task. Most committees (...) met many of the guidelines; for example, almost all had two or more lay-members. The guideline most frequently not met was that committees should have no more than 12 members. Many committees review very large numbers of projects (maximum 351). Approximately two-thirds provide details in the annual report of individual project titles, their author and the committee decision; all reports should contain this information. Although it may in fact happen more generally, only 23 per cent of the reports referred to any form of monitoring of the eventual outcome of the research. A significant issue to arise from the reports is the extent to which the framework for the operation of LRECs has been confused by the development of the purchaser-provider split. The paper concludes with suggestions for remedying the situation. (shrink)

BackgroundIn the Canadian Alliance for Healthy Hearts and Minds (CAHHM) cohort, participants underwent magnetic resonance imaging (MRI) of the brain, heart, and abdomen, that generated incidental findings (IFs). The approach to managing these unexpected results remain a complex issue. Our objectives were to describe the CAHHM policy for the management of IFs, to understand the impact of disclosing IFs to healthy research participants, and to reflect on the ethical obligations of researchers in future MRI studies.MethodsBetween 2013 and 2019, 8252 participants (...) (mean age 58 ± 9 years, 54% women) were recruited with a follow-up questionnaire administered to 909 participants (40% response rate) at 1-year. The CAHHM policy followed a restricted approach, whereby routine feedback on IFs was not provided. Only IFs of severe structural abnormalities were reported.ResultsSevere structural abnormalities occurred in 8.3% (95% confidence interval 7.7–8.9%) of participants, with the highest proportions found in the brain (4.2%) and abdomen (3.1%). The majority of participants (97%) informed of an IF reported no change in quality of life, with 3% of participants reporting that the knowledge of an IF negatively impacted their quality of life. Furthermore, 50% reported increased stress in learning about an IF, and in 95%, the discovery of an IF did not adversely impact his/her life insurance policy. Most participants (90%) would enrol in the study again and perceived the MRI scan to be beneficial, regardless of whether they were informed of IFs. While the implications of a restricted approach to IF management was perceived to be mostly positive, a degree of diagnostic misconception was present amongst participants, indicating the importance of a more thorough consent process to support participant autonomy.ConclusionThe management of IFs from research MRI scans remain a challenging issue, as participants may experience stress and a reduced quality of life when IFs are disclosed. The restricted approach to IF management in CAHHM demonstrated a fair fulfillment of the overarching ethical principles of respect for autonomy, concern for wellbeing, and justice. The approach outlined in the CAHHM policy may serve as a framework for future research studies.Clinical trial registrationhttps://clinicaltrials.gov/ct2/show/nct02220582. (shrink)

ABSTRACT Global biodiversity declines are increasingly recognized as profound ecological and social crises. In areas subject to colonialization, these declines have advanced in lockstep with settler colonialism and imposition of centralized resource management by settler states. Many have suggested that resurgent Indigenous-led governance systems could help arrest these trends while advancing effective and socially just approaches to environmental interactions that benefit people and places alike. However, how dominant management and conservation approaches might be decolonized (i.e., how their underlying colonial structure (...) might be addressed, transformed, and replaced) is not always clear. Here, we describe a ‘Decolonial Model of Environmental Management and Conservation’ as an alternative paradigm to dominant approaches of conservation and management. The tenets of the model describe characteristics that might be expected of decolonized management, contrasted with those of dominant state-led approaches such as those embedded in the North American Model of Wildlife Conservation. The model does not prescribe how Indigenous governments or communities ought to govern their own territories, but instead offers insights into how external management and conservation agencies and practitioners might support (or stop impeding) Indigenous-led governance. We illustrate the model with a conservation ‘bright spot’: grizzly bear stewardship in the area now referred to as the Great Bear Rainforest in British Columbia, Canada, with a focus on work led by or in collaboration with, and within the territories of, the Haíɫzaqv, Kitasoo/xai’xais, Nuxalk, and Wuikinuxv First Nations. While acknowledging the important context-specific variability among place-based management and conservation applications, we also discuss the model’s broader applicability. (shrink)

The following uncollected Chesterton article was published in the Speaker of November 2, 1901 as part of a series entitled "Some Urgent Reforms." Chesterton's reference to Mr. Moody is, of course, a reference to Mr. Charles Edward Moody , the founder of the famous Moody's Lending Library. This Library was a peculiarly English institution, and was well known for the care which it took to avoid circulating literature that might be regarded as immoral.

The following uncollected Chesterton article was published in the Speaker of November 2, 1901 as part of a series entitled "Some Urgent Reforms." Chesterton's reference to Mr. Moody is, of course, a reference to Mr. Charles Edward Moody (1818-1890), the founder of the famous Moody's Lending Library. This Library was a peculiarly English institution, and was well known for the care which it took to avoid circulating literature that might be regarded as immoral.

This paper shows that moral progress is a substantive and plausible idea. Moral progress in belief involves deepening our grasp of existing moral concepts, while moral progress in practices involves realizing deepened moral understandings in behavior or social institutions. Moral insights could not be assimilated or widely disseminated if they involved devising and applying totally new moral concepts. Thus, it is argued, moral failures of past societies cannot be explained by appeal to ignorance of new moral ideas, but must be (...) understood as resulting from refusals to subject social practices to critical scrutiny. Moral philosophy is not the main vehicle for disseminating morally progressive insights, though it has an important role in processes that lead to moral progress. Yet we have grounds for cautious optimism, since progressive moral insights can be disseminated and can, sometimes, have constructive social effects. (shrink)

[anarchism] desires above all…the political, economic, and social equalization of the two sexes…we demand…that every individual, man or woman, coming into life, shall find as nearly as possible equal means for the development of his or her different faculties and for their utilization by his or her labor; to organize a society which, renders for every individual…the exploitation of anybody else, impossible.

The character of Tom has the proportions of a mythic figure. His story has little of the melodrama of the secondary plot for his heroism in meeting the trials of slavery is manifested not in outward risks and adventures but in inner strength. In Simon Legree, Tom's final adversary, Stowe provides a perfect antithesis, an ultimate image of what slavery must do to the master who takes advantage of his position and uses his power without restraint; for Legree is an (...) ambitious Vermonter, not a Southern, an owner, not an overseer, and a product of the raw, final phase of slavery in the cotton plantations of the deep South. Legree bends every effort to brutalize Tom as though of necessity to prove that he and the South are right about Negroes and slavery, and Tom remains firm in his humanity and so disproves the sordid myth of his oppressor. It is Legree who is dehumanized by the institution of slavery. Tom emerges from the struggle as an example not simply of a black Christian slave, but of a heroic man in the face of intimidating and humiliating power. Moody E. Prior, emeritus professor of English and former dean of the graduate school of Northwestern University, is the author of The Language of Tragedy, Science and the Humanities, and The Drama of Power-Studies in Shakespeare's History Plays. See also: "The Ethics of Uncle Tom's Children" by Tommie Shelby in Vol. 38, No. 3. (shrink)

This paper shows that Nussbaum's Aristotelian essentialism effectively combines resources for constructive social criticism (even in “traditional” societies) with concern for the concrete particulars of realized ways of life. Many critics of Nussbaum’s views have failed to appreciate its many virtues in this regard. Yet Nussbaum's confidence in the broad possibilities of internal social criticism demands a better account of the moral openness of human cultures than anything Nussbaum has herself provided. Even Nussbaum's reading of Aristotle – as well as (...) the ethical antirelativism on which it depends – demands a richer account than Nussbaum has so far offered of the essential openness of human world interpretations. (shrink)

Deleuzian Encounters brings together sixteen accessible, thought-provoking essays that examine the practical and ethical implications of Deleuze's philosophy for different contemporary social issues. Topics explored include: the environment, terrorism, refugees, indigenous reconciliation, gender, suicide, intellectual disability, injecting drug use, classroom teaching and global activism. Each contribution provides practical examples of how to make use of Deleuze's thought in social research, and offers fresh insights into the creative and innovative potentials Deleuze's philosophy holds for social thought and action.

This collection demonstrates how physical objects, materials, space and environments teach us, and redefines practice with theory as a more-than-human network. The contributions illustrate how the materials, process, pedagogies and theories of Arts making question and disrupt the many forms of cultural dominance that exist in our society.

Children, the image of the child, and the gendered figures of the girl and the boy are thematics that run through the work of Deleuze and feature prominently in his joint writing with Guattari. However, there are many different children in Deleuze's writings. Various child figures do distinct things in Deleuze's work. In this article, I argue that his work on children can be utilized to rethink popular, teleological notions of childhood and growing up.

This book has two principle aims. The first is to criticize moral relativism by criticizing the claim that there are deep and rationally intractable moral disagreements. The second is to develop an account of morality and moral inquiry that allows for moral objectivity of a sort that relativists would deny, without modeling moral inquiry on scientific inquiry.

Fieldwork in Familiar Places challenges the misconceptions about morality, culture, and objectivity that support these skepticisms, to show that we can take ...

This chapter offers an interpretation of the integrated dance theatre of the Restless Dance Company as involving a process of turning away from the determinations of intellectually disabled bodies in medical discourses using the Deleuzian concepts of ‘becoming’ and ‘affect’. It contends that bodies with intellectual disability are constructed through specific systems of knowledge and argues that performance spaces can offer radically new ways of being affected by people with disabilities. It also highlights the importance of Gilles Deleuze and Félix (...) Guattari's works in providing models for understanding minor or politically marginalised knowledge systems. (shrink)

:This article examines material economies of carbon fibre as a prosthetic form of masculinity. The paper advances three main arguments. Firstly, carbon fibre can be a site in which disability is overcome, an act of overcoming that is affected through masculinized technology. Secondly, carbon fibre can be a homosocial surface; that is, carbon fibre becomes both a surface extension of the self and a third-party mediator in homosocial relationships, a surface that facilitates intimacy between men in ways that devalue femininity (...) in both male and female bodies. Carbon fibre surfaces are material extensions of subjectivity, and carbon fibre surfaces are vectors of the cultural economies of masculine competition. Thirdly, the article gives an account of Oscar Pistorius as an example of the masculinization of carbon fibre, and the associated binding of a psychic attitude of misogyny and power to a form of violent and competitive masculine subjectivity. The paper unpacks the affects, economies and surfaces of “carbon fibre masculinity” and discusses Pistorius’ use of carbon fibre, homosociality and misogyny as forms of protest masculinity through which he unconsciously attempted to recuperate his gendered identity from emasculating discourses of disability. (shrink)

This essay advances a new materialist philosophy of faith. Mobilizing affect, I show that a change in the capacity to act, such as that created through belief or non-belief, is an experience that unites both secular and religious people. Belief in the superiority of secular culture over religious culture, or vice versa, are affectively similar corporeal orientations.